Yes, I do. It's not the disease itself that's the problem, but the responsibility of caring for me that worries me. I'm no longer independent, so I live with my daughter, my son-in-law, and my two grandkids. I've been here for several months already. My daughter and her husband have to cook for me, take off of work to take me to appointments, clean up after me, help me get to the restroom, do my physical therapy, help me get dressed and bathed, and much more. I feel like a burden. Don't get me wrong, they always say they're glad I'm here and that it's no problem to care for me and that they're doing it out of love. I know all of that and I'm thankful for their support, but despite my bodily decline, I still have my mind and I know it's a lot of work and sacrifice! I worry that the physical, mental, and emotional grind of caregiving is the legacy I'm now leaving behind.
My family knows that I'm using this service to leave behind some video messages for them. It would upset my daughter to know that I worry about these things, so I'm posting anonymously.